Kayley, a 6 year old from Navan, Co. Meath suffers from a form of Cerebral Palsy known as Spastic Diplegia. Unsurprisingly medical care in Ireland for this condition is sub par and Kayley is considered lucky to receive monthly physiotherapy. Waiting lists for operations and equipment are long, according to her mother they waited 2 years for a wheelchair for Kayley and she was nearly 4 years old before she received a K-walker to help her walk. In October she is due to fly to St Louis, Missouri, USA, for a procedure called Selective Dorsal Rhizotomy at the St Louis Childrens Hospital. This surgery has been performed for over 20 years by Dr Park and his team at the hospital. It involves severing the nerves that cause the tightness and stiffness in the leg. This allows the remaining nerves to the leg muscles to take over and will give her best and only chance of having life that little bit easier, and possibly being able to walk independently.
Her parents have sent up a charity called Help Kayley Walk in order to raise the necessary funds to bring Kayley to Missouri in October. They need to raise €50,000 and are organising various events to do so.
An Evening Dance takes place on Friday 30 July in Menlo Park Hotel, Tuam Road, Galway. Admission €10.
Ceoil for Kayley takes place on Sunday 01 August in Ryan’s of Gormalough, Stackallen, Co. Meath. Tickets are €15 or 2 for €25. There will be food and drink available on the festival site, which is licensed to serve alcohol.
The line up includes: Township Rebellion (RATM Tribute), The Myth, The Whatmans, Minty & the Freshmen, The Boondock Saints, Happy Larry & the Lino Layers, Trigger & the Hitmen, Martin Moran & Band, Catch 22, Red Queen Contest, Saramai & the Swords, Ruairi Coogan, The Great Simones, Lizzy Oakes, Frenzy, Aiden McCluskey, Joy Booth, David Harrison, Liam Gilsenan, Hidden Depths, Alan McGoona and all-day acoustic session with special guests.
A Parachute Jump will take place on either Sunday 08 or 15 August in the Irish Parachute Jump Centre, Offaly. The jump is €260 plus you need to raise another €260 or more for Kayley. Participation must be confirmed by Monday 12th July.
Knights Bar Navan will hold a fundraising night on Friday 27 August with music from Deep Six, followed by a DJ. There will be food on the night provided by Four Star Pizza and prizes to won.
Comedians Finbarr Coveney and Leon Sheehan are hosting 10,000 hugs for Kayley. The pair have already walked 200km to raise funds and awareness for Kayley and now they will visit Cork, Waterford, Kilkenny, Carlow and Dublin in search of hugs, at a very affordable €1.
Direct donations can be made through Paypal – Click here to donate.
Donations can also be made to:
Permanent TSB
Navan
AC/No. : 17104545
Sort Code: 99-06-15
IBAN: IE02IPBS99061517104545
BIC: IPBSIE2D
